Working together to improve the outcome for patients with rare, life-threatening, inherited disorders of the immune system.
You Can Help
See opportunities to participate in research and help further innovations in care for patients like you.
Find a Study Learn About Our Foundation
Learn About Newborn Screening
Infants with SCID who are transplanted before 3 months of age fare better than infants who are transplanted later in life. Learn more about newborn screenings for SCID and help improve outcomes for this rare disorder in the future.
Learn MoreNIH Announces Funding to Establish and Strengthen Rare Disease Research Groups
The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).
Participation Needed: Survey on Transplant for Treatment of Chronic Granulomatous Disease
Did you or a child have a transplant for CGD?
Rare Research Report: January 2023
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research.
PIDTC Updates
Issue 23 | Summer
Learn More