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Working together to improve the outcome for patients with rare, life-threatening, inherited disorders of the immune system.

 

 

Research Studies

You Can Help

See opportunities to participate in research and help further innovations in care for patients like you.

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Learn About Newborn Screening

Infants with SCID who are transplanted before 3 months of age fare better than infants who are transplanted later in life. Learn more about newborn screenings for SCID and help improve outcomes for this rare disorder in the future.

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Rare Research Report: May 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Rare Research Report: April 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Rare Research Report: February 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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PIDTC Updates

Newsletter of the Primary Immune Deficiency Treatment Consortium

Issue 17 | Winter

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