Working together to improve the outcome for patients with rare, life-threatening, inherited disorders of the immune system.
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See opportunities to participate in research and help further innovations in care for patients like you.
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Learn About Newborn Screening
Infants with SCID who are transplanted before 3 months of age fare better than infants who are transplanted later in life. Learn more about newborn screenings for SCID and help improve outcomes for this rare disorder in the future.
Learn MoreJoin the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025
Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on February 27-28, 2025.
Rare Research Report: May 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
Rare Research Report: April 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
PIDTC Updates
Newsletter of the Primary Immune Deficiency Treatment Consortium
Issue 19 | Spring
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