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Rare Research Report: May 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below.Jump to:

Rare Research Report: April 2024

April 24 2024

Rare Research Report: February 2024

February 23 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Participation Needed: Survey on Transplant for Treatment of Chronic Granulomatous Disease

January 11 2024

Logos for the Primary Immune Deficiency Treatment Consortium, CGD Association of America, and University of Pittsburgh.

Severe Combined Immune Deficiency Over Time: What We’re Learning from Natural History Studies

December 12 2023

Rare Research Report: August 2023

August 14 2023

Rare Research Report: February 2023

February 22 2023