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An NIH-Funded Rare Diseases Clinical Research Network Consortium

Latest News

Rare Research Report: February 2023

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research. 

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Rare Research Report: January 2023

January 20 2023

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PIDTC/IEWP STAT1 GOF HSCT STUDY - Now open!

December 21 2022

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Artemis-SCID Gene Therapy Featured in UCSF Video

December 13 2022

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Jennifer Puck, MD

Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

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Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

Rare Research Report: October 2022

October 6 2022

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Rare Research Report: September 2022

September 7 2022

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Occupational Lead Exposure is Associated with Shorter Survival in ALS and More: RDCRN Research Roundup

May 9 2022

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Scientist working on a computer in a lab

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

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Three icons featuring a trio of silhouettes, a chemistry flask and stethoscope, and a contact card appear next to the text, Join Our Contact Registry - Learn about opportunities to participate in our research, receive information about our work, connect with our consortia and patient advocacy groups. rdcrn.org/registry appears next to the Rare Diseases Clinical Research Network logo
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The Primary Immune Deficiency Treatment Consortium (PIDTC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). PIDTC is funded under grant number U54AI082973 as a collaboration between NCATS and the National Institute of Allergy and Infectious Diseases (NIAID). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke NINDS) under grant number TR002818. The content of this website is solely the responsibility of the PIDTC administrative coordinating center at University of California, San Francisco and does not necessarily represent the official views of the NIH.

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