Patient Advocacy Groups

Patient advocacy groups specializing in primary immune deficiency are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.

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CGD Association of America

Advocates for patients and carriers with chronic granulomatous disease (CGD).

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Hyper IgM Foundation

Seeks to improve the treatment, quality of life, and long-term outlook for children and adults living with hyper IgM.

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Immune Deficiency Foundation

Improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.

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Jeffrey Modell Foundation

Works to improve treatment, diagnosis, and find a cure for primary immunodeficiency through research, education, support, advocacy, awareness, and newborn screening.

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SCID Angels for Life

Increases awareness and provides support for those affected by severe combined immune deficiency (SCID).

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Wiscott Aldrich Foundation

Funds research to find improved cures for Wiskott-Aldrich syndrome and supports families living with the disease around the world.

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XLA Life