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Patient Advocacy Groups

Patient advocacy groups specializing in primary immune deficiency are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.

CGDAA logo

CGD Association of America

Advocates for patients and carriers with chronic granulomatous disease (CGD).


Hyper IgM Foundation

Seeks to improve the treatment, quality of life, and long-term outlook for children and adults living with hyper IgM.

IDF logo

Immune Deficiency Foundation

Improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.

JMF logo

Jeffrey Modell Foundation

Works to improve treatment, diagnosis, and find a cure for primary immunodeficiency through research, education, support, advocacy, awareness, and newborn screening.


SCID Angels for Life

The only global patient organization dedicated to empowering every SCID patient to strive for the highest possible quality of life.

WAS logo

Wiscott Aldrich Foundation

Funds research to find improved cures for Wiskott-Aldrich syndrome and supports families living with the disease around the world.


XLA Life

XLA Life is uniting the global XLA community in community-based activism and community-focused advocacy.