Working together to improve the outcome for patients with rare, life-threatening, inherited disorders of the immune system.
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See opportunities to participate in research and help further innovations in care for patients like you.
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Learn About Newborn Screening
Infants with SCID who are transplanted before 3 months of age fare better than infants who are transplanted later in life. Learn more about newborn screenings for SCID and help improve outcomes for this rare disorder in the future.
Learn MoreNIH Announces Funding to Establish and Strengthen Rare Disease Research Groups
The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).
$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network
Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.
Pre-Doc Preparatory Program (P³) in Translational Research
Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and translational research?
PIDTC Updates
Issue 19 | Spring
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