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A Previously-Funded NIH Rare Diseases Clinical Research Network Consortium

Latest News

NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).

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Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

Participation Needed: Survey on Transplant for Treatment of Chronic Granulomatous Disease

January 11 2024

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Logos for the Primary Immune Deficiency Treatment Consortium, CGD Association of America, and University of Pittsburgh.

Rare Research Report: January 2023

January 20 2023

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Rare Research Report logo

PIDTC/IEWP STAT1 GOF HSCT STUDY - Now open!

December 21 2022

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Primary Immune Deficiency Treatment Consortium logo

Artemis-SCID Gene Therapy Featured in UCSF Video

December 13 2022

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Jennifer Puck, MD

Occupational Lead Exposure is Associated with Shorter Survival in ALS and More: RDCRN Research Roundup

May 9 2022

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Scientist working on a computer in a lab

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

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Three icons featuring a trio of silhouettes, a chemistry flask and stethoscope, and a contact card appear next to the text, Join Our Contact Registry - Learn about opportunities to participate in our research, receive information about our work, connect with our consortia and patient advocacy groups. rdcrn.org/registry appears next to the Rare Diseases Clinical Research Network logo

SCID, Angels for Life Foundation Announces 2022 Grant Awardees

January 24 2022

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Headshots of Donald Kohn, MD, and Jolan Walter, MD, PhD

RDCRN Research Roundup: November 2021

November 1 2021

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The Primary Immune Deficiency Treatment Consortium (PIDTC) is a previously funded research group  of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). PIDTC received funding under grant number U54AI082973 as a collaboration between NCATS and the National Institute of Allergy and Infectious Diseases (NIAID). This website is hosted by the network’s Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and the National Institute of Neurological Disorders and Stroke NINDS) under grant number TR002818. The content of this website is solely the responsibility of the PIDTC administrative coordinating center at University of California, San Francisco and does not necessarily represent the official views of the NIH.

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