Patient Advocacy Groups
Patient advocacy groups specializing in primary immune deficiency are here to help you. They are devoted to providing support, resources and services for patients and families. Join these groups to help yourself, your family, and other patients.
CGD Association of America
Advocates for patients and carriers with chronic granulomatous disease (CGD).
Hyper IgM Foundation
Seeks to improve the treatment, quality of life, and long-term outlook for children and adults living with hyper IgM.
Immune Deficiency Foundation
Improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.
Jeffrey Modell Foundation
Works to improve treatment, diagnosis, and find a cure for primary immunodeficiency through research, education, support, advocacy, awareness, and newborn screening.
SCID Foundation
We are committed to compassion, integrity, and collaboration, empowering every family with vital information and resources to effectively manage SCID – from diagnosis and beyond.
Wiscott Aldrich Foundation
Funds research to find improved cures for Wiskott-Aldrich syndrome and supports families living with the disease around the world.
XLA Life
XLA Life is uniting the global XLA community in community-based activism and community-focused advocacy.