Did you or a child have a transplant for CGD? Help the Chronic Granulomatous Disease Association of America (CGDAA) and Primary Immune Deficiency Treatment Consortium (PIDTC) learn more about post-transplant health. The survey is expected to take 10-15 minutes to complete and will help us learn how to manage post-transplant conditions and advocate for standardized medical care. Survey is open until February 14, 2024.
Code
PIDTC
Issue 23 | Summer
PIDTC Newsletter Issue 23
Issue 22 | Winter
PIDTC Newsletter Issue 22
Issue 21 | Fall
PIDTC Newsletter Issue 21
Issue 20 | Summer
PIDTC Newsletter Issue 20
Participation Needed: Survey on Transplant for Treatment of Chronic Granulomatous Disease
Issue 17 | Winter
Greetings from PIDTC Co-PIs, PAG updates, welcoming Rebecca Marsh to the PIDTC Steering Committee, Artemis-SCID Gene Therapy Clinical Trial updates and more.
Issue 16 | Summer
Read greetings from the PIs, a spotlight on a CGD Family, PAG updates, discover Neurodevelopmental Outcomes in SCID Study, meet the PMWC Awardee, learn about ASTCT/CIBMTR Tandem Meeting presentations, protocol updates, and more.
Issue 15 | Spring
Read about Arturo Garcia and his family’s experience with the Jeffrey Modell Foundation’s Roots & Wings Program