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PIDTC

Issue 10 | Fall

Five more years, three new protocols, two Co-PIs and one amazing consortium with the shared goal of improving the lives of people living with primary immunodeficiencies. This grant cycle, we introduce Primary Immune Regulatory Disorders (PIRD) to our list of diseases studied and look forward to collaborating with our partners at the newly funded Cincinnati DMCC.

Issue 05 | Spring

Updates from Patient Advocacy Groups, IDF Educational Packets & Conference, current enrollments and goals, 6901 Prospective SCID update, PIDTC patient highlight, meet UCSF’s Ja’ Ceon, RDCRN DMCC Update, and more.

Issue 13 | Summer

We are finally getting close to opening our three new longitudinal protocols for this funding cycle. The SCID protocol (6907) is approved by the UCSF IRB, with other sites to follow; CGD (6908) will be submitted to the IRB shortly; PIRD (6906) investigators are reviewing comments from NIAID.

Issue 11 | Spring

Greetings from PIDTC Co-PIs Dr. Puck and Dr. Kohn, patient and family photos, updates from SCID Angels for Life Foundation and the Immune Deficiency Foundation, recognizing the 2020 & 2021 research training grants awardees, and more.